Our thoughts have the power to either uplift us or upend our inner lives, says Joan Lee, who wrestled with two schizophrenic episodes and major depressive disorder in her late 20s. Positive self-talk, along with psychiatric and psychological treatment, was one critical tool that helped Joan walk through these trying times.
While hunkering down during the Covid-19 pandemic, the Chicago-based professional translated her experiences into a mini-guide entitled How We Talk To Ourselves. She collaborated with New York City-based artist Connie Van on the book.
Tell us more about your journey with mental health.
I’m a Korean-American, born and raised in Chicago, and I basically grew up with the same “golden child script” as many Asian Americans. I studied well and was super achievement-oriented. It felt like everything was always going on that well-trodden path – study engineering, go into consulting, go to business school, then move to New York.
And I did live in New York for a couple of years. And while I was at the so-called height of my career, just as I felt like I had built up something me and my parents could be proud of, I actually experienced a paranoid schizophrenic episode. That happened in 2014 and brought me back to Chicago without a job, unemployed. I started to become isolated from everyone.
Just to share a bit about the condition – people with schizophrenia sometimes have auditory hallucinations, visual hallucinations, and sometimes they’d have paranoid thoughts, like thoughts that people were going to hurt them.
Somehow, I managed to weasel myself out of my particular brand of schizophrenia, and I rejoined the workforce back in 2016. I was pretty stable for a year or so, and then I decided to get back on that “path”, do what my friends were doing, and try to keep living that dream. I went to San Francisco to get a job, but there I experienced another schizophrenic episode again.
So, round two, another year down the drain – or at least that was how I felt.
As a hangover from all that has happened, I later developed social anxiety and major depressive disorder. To be honest, of all the mental health challenges I’d been confronted with, depression was the most difficult, because it’s sort of like a pain that sits in your chest and immobilises you. It can be accompanied by perpetual negative thoughts, you devalue yourself and you’re on guard against others. You constantly anticipate negative outcomes from other people and your situation.
And one of the things that kicked off my recovery from depression was positive self-talk.
And that was what started the book?
I wrote the book as a quarantine project (during the Covid-19 crisis) and then I found Connie, my illustrator, through a friend of a friend. So we decided to launch it as a fundraiser, but it’s going to be free for students or anyone unemployed. We have also gotten in touch with the National Alliance on Mental Illness, the Asian Mental Health Collective, and other organizations.
There’s always value hearing from someone who has walked the path you’re wrestling through right now, lived the experience and shown that it is survivable. So I hope this can be a helpful resource to others.
How do you believe yourself, though, when you try talking to yourself positively?
So I was in a funk when I started thinking very negatively about myself, others, and my situation. But what positive self-talk can help you do – even if you don’t believe it at first – is to transform your core beliefs. It tells you “I am worthy of good things,” “I am worthy of love,” “I am loved,” and stuff like that.
As you increase your extent of positive self-talk, you’ll notice that because you’re trying to give yourself a boost, your attitude changes a little bit. It might be imperceptible, but you’ll get positive reinforcement from others that will kind of bring you back up as well.
A lot of people don’t want to change until things get so bad – and I was like this myself. There were a couple of months when I was just in bed and couldn’t do anything, and I told myself this is bad, this isn’t how my brain used to work. And I wanted to fix it in a constructive way.
Life comes with a lot of challenges, you know. There’s always going to be the possibility of disappointment, and if you don’t know how to talk to yourself, it can be very painful.
Did you get support from your network of friends and family?
Some people’s initial reactions were quite hurtful to me, actually. Some started to shy away, not wanting to talk or spend too much time with me. There were others who stuck by me, but I knew it was difficult for them too. It affected their social capital and all that.
It’s interesting to see how people sometimes decide to shy away from someone with a mental condition, at precisely a time when the support can be very helpful, even necessary, for the sufferer. Some people have subconscious biases or think it’s “unlucky” to be associated with someone who is mentally unwell. Some even think it’s contagious, etc.
Based on your observations and personal experiences over the years, how have people’s mindsets around mental health changed?
So I think mental health is pretty “trendy” right now, and it’s a good thing. People are thinking about how they can accept and evaluate themselves and others, and that’s good. But for the older generation, it still is quite a “taboo” issue to talk about. A lot of people wouldn’t like to go into too much detail when sharing about their struggles with mental health.
The younger generation may be kind of familiar with talking about emotional health, especially with the pandemic and everything, but they are just getting started.
Do you think there is a cultural aspect as well? Some people say that Asian cultures tend to stigmatize mental health.
My parents understand now because they were forced to live it (with me). They had a hard time and may have seen me as “defective” for a while, as someone who went from golden child to black sheep. I was the person that they were like, you know, so disappointed and heartbroken over for a while. I didn’t trust them either, at that time. We had a lot of hard moments. But they stood by me, and through the slow healing process, we’re now a lot closer than we ever have been.
But then I do remember people around me, including those at church talking behind my back. Even my mom would tell me how they’d refer to me as “the crazy one”. I remember desperately wanting friendships but not quite finding them. I would say that these experiences could be true outside the Asian cultures as well, though.
Where are you now in this healing journey? Do you have plans for the future?
I don’t identify with schizophrenia anymore. I haven’t had any episode since, like, October of 2018.
I started a non-profit a couple of months ago, providing virtual SAT prep for students in the Chicagoland area. And I’d like for that to grow into a sustainable non-profit. We crowdfunded this year, but I hope we can get grants going forward, to do that for a larger group of students.
After tumbling from this “normal path” and being way off course from where I thought I would be, I have kind of reframed everything. I am very fulfilled in my current job in the healthcare technology sector, but what’s more important for me now is to learn as much as I can. I don’t know if I’ll be in a position where I can help fix anything related to healthcare, but that is kind of in the back of my mind.
Have you ever felt like what is normal to you is way outside of what is normal for the people around you? At times like that, having a friend who has gone where you’ve gone, and whom you can share with and listen to, is like a balm to the soul.
Tanushree: I grew up in Queens, New York. I was born and raised here. I have always had ADHD, depression, and these were things that went undiagnosed until well into my adulthood. I realised that all of this stuff went unnoticed because they were often brushed aside,like, you know, “Oh, she’s just shy,” or “She’s kind of quiet,” but that’s not what was happening.
It’s not that I blame my family; I think they just didn’t quite know how to identify what was going on. And that was what inspired me to want to normalise conversations around mental health.
The Desi Condition started about a year ago. Once I decided that we wanted to talk about de-stigmatisation of mental health, I knew we had to be talking about culture. I realised there was a need for people to be talking about mental health and what is it about Desi culture that kind of exacerbates certain attitudes toward mental health.
Tanushree: I think there was a fair bit of pressure to live up to the “immigrant dream.” And if I’m being honest, I think there is a lot of sexism in Asian culture, so that definitely contributed to it. I had a lot of anxiety as a kid, a lot of emotional problems.
In Desi culture, people kind of just sweep that kind of stuff under the rug, because they themselves were never really exposed to that back in their home countries. So when they see it happening here, they are just kind of like, it’s not a big deal, it’s a “mood.” A “mood” is very different from a mental health condition, but that is what it gets written off as; like it’s just temporary, and not real, you know?
Tanushree: I guess there were a couple other ways I could have done this, like writing or making videos. I know that I’m too lazy to make videos. I did consider writing, but I know that I don’t necessarily have the discipline to write once a week or a few times a week.
I like listening to podcasts; I like the audio medium and I enjoy listening to audiobooks. And podcasting just felt like a good way to interview other people and to have them own my show, speaking in their own voice. And I really like that.
Tanushree: One thing that comes up a lot is the conditioning – which is also where the name of this podcast comes from – we receive from our society. For example, women are very much seen as martyrs, you know? So we talk about female martyrdom.
And because Desi culture is very much influenced by the days of the British occupation, it’s also very survivalist – you tend to have a sense of distrust against people outside the family. And if you do something your family disapproves of, it’s like “dishonouring” your family. We also talk about familial pressures. We tend to live in multi-generational families, which doesn’t happen a lot in Western cultures.
Tanushree: I did one episode about platonic heartbreaks, like what happens when friendships end. I called in a mailbag episode, because a lot of people just submitted entries of their similar experiences. It was very vulnerable and there were a lot of people talking on it and just being really, real and raw.
Another episode I really like was on the intersection of religion, spirituality and mental health. My guest and I discussed our experiences of how in our respective religions, people often dismiss mental health issues using religion, and they’d say things like, why don’t you just pray? And I think that resonated with a lot of people.
Tanushree: I want people to feel comfortable talking about mental health, and I hope that when they look at my page, they’d realise there are lots of different kinds of people talking about this stuff in an open and vulnerable way. And I hope that serves as an example that you can do that as well, whoever you are.
Ayushi: Adishi and I have known each other for quite a long time, since 2012 when we were in college. We always wanted to set up something around mental health because we both have been living with our own mental health conditions. We have been talking for a long time about creating some advocacy and awareness in this space, which are really lacking in India.
My first experience with therapy was back in 2017. Back then I was a master’s student, researching on women studies. We saw a lot of film and documentaries with a lot of “triggering” content around sexual violence, which reminded me of my own experiences with sexual violence. But it was when I was in therapy that I started developing symptoms of depression and anxiety, as I struggled a lot with a professor’s perception and I would also say, harassment, of certain students. Later I saw a psychiatrist and was prescribed some medication for depression, which I was okay with taking but was highly stigmatised by the people around me. They used a Hindi word to describe me, which basically translated into “mad person”. So sometimes even if you don’t stigmatise yourself, the people around you and the comments they make can be like ticking time bombs, if they don’t have the right mindset about mental health.
Adishi: We felt the need to do something like MHTI because nobody around us was talking about it. It made us feel like what we’re experiencing was alien, not relatable, or it’s something that just happened to us for reasons we couldn’t understand. It became very important for us to have that space to voice our confusion, and to connect with people who may resonate with our issues and experiences.
With respect to my own mental health issues, I really don’t know where to start! I remember as a teenager, often crying myself to sleep and I didn’t know why I was feeling this way. School was also an unpleasant experience because of a lot of bullying, and I was always a very reserved child. The year 2015 was when I finally could not look away from the fact that I was not okay, because I was suicidal all the time. It took me around two years from that time to actually go and seek help – I first stepped into a therapist’s office, also in 2017. It’s been three years of seeking therapy, I don’t have an official diagnosis but I still do struggle with suicidal ideation and am trying to deal with that.
Adishi: A lot of it is still very much focused on how mental health is individualised, but our outlook is completely not that way. Many still make it out to be a “personal failure”, in the sense that like, if you are struggling, it’s because you did not do something right. Or you are not thinking positively. Or you are not being grateful enough about life. But it’s not as simple as that.
Ayushi: So at MHTI, we want to discuss mental health through lived experiences and also with a social lens, looking at how our social and environmental factors influence mental health. There are so many factors at play in the Indian culture, such as class, gender, sexuality, religion. In particular, religion is really dominant in India. A lot of people are religious and there is this belief that if you are dealing with some mental health issues, you might have become “possessed” or something. And that your religious identity is going through a crisis, or people just attach some religious element to it. Some people believe you can get it “fixed” by going to a priest who will conduct some rituals.
Adishi: Definitely. For example, if we want to talk to our family members about what we’re going through, the attempt could snowball into a conversation about how there is something deeply wrong with you. On the face of it, there appears to be more initiatives coming up that seek to increase conversations about mental health. There is a lot of buzz and, to some extent, “noise” online. But in terms of whether this is translated into our conversations offline, we don’t think much has changed.
Just recently, a very famous Bollywood actor allegedly died by suicide, and the way people are talking around it, including the media, is sensationalism on another level – in a very ignorant and insensitive way. None of that gives you the impression that mental health is becoming less stigmatised.
Ayushi: There has been a lot of news coverage on this incident. Some news channels dug up past videos of him during better times with his family, and actually had the audacity to comment that he didn’t look like someone who was suffering from depression. And that is the kind of narrative that we often encounter in India – that if a person is looking a certain way, they can’t really have a mental health issue. There are so many other examples and we could spend a whole day talking about it.
Adishi: Our work was initially just online, we dedicated our efforts to creating content around mental health awareness. We gradually also started holding physical events. For instance, we had a workshop on suicide prevention last year, and another on friendship breakups.
We believe in the value of personal experiences, which is why we want to give a platform to people for sharing their personal experiences. We also believe in art as a medium of expression, since not everyone shares their feelings through writing or talking.
Adishi: I think every day, we wake up to new ways in which the pandemic is affecting us. Initially, I think a lot of people were coping by overworking themselves and being “productive”. So there was like a “productivity high”, especially for some of us who were feeling hopeless and stuck in places that may not be the safest and such – and we almost felt the need to similarly be productive.
Ayushi: I think one positive outcome of the pandemic, for some people, is that they are pushed to keep them and their families within safer spaces. Perhaps some were even able to devote more time to their favourite hobbies. But there are also a lot of people who don’t have access to certain resources, like tech tools. For many people, homes are also not necessarily the safest places… Some people haven’t shared about their mental health issues with their families, and are now stuck with them. Also, not a lot of people have homes that are huge or where they can carve out their own space. Thus there are a lot of people who aren’t able to access therapy as well.
As we speak, India just clocked the highest number of cases in the world, giving us another world record – not in a good way.
We do hope that MHTI can provide some respite during this time, especially for those who feel stuck in more challenging living situations.